Mitchell Goldstein, M,D., Susan Hepworth
On September 10, 2020, the National Coalition for Infant Health held its 2020 Virtual Conference. Although it was orginally scheduled to be a in presence summit, difficulties secondary to the COVID 19 pandemic forced the meeting virtual.
Agenda 11:30 a.m. Welcome
- Susan Hepworth, Executive Director, National Coalition for Infant Health
11:35 a.m. Opening Remarks
- Julian Nixon, NICU Dad; CAFLS Director of Diversity & Inclusion, Clemson University
11:45 a.m. The Forgotten Preemies: Late Preterm Infants
- Viveka Prakash-Zawisza, MD, MS, MBA President-Elect, National Perinatal Association
- Erin Sundseth Ross, PhD, CCC-SLP Assistant Clinical Professor, Department of Pediatrics, School of Medicine, University of Colorado
- Host: Susan Hepworth, National Coalition for Infant Health
12:05 p.m. RSV & COVID-19: Double Trouble
- Suzanne Staebler, DNP, APRN, NNP-BC Emory University School of Nursing; National Coalition for Infant Health
- Crystal Baker, Patient Advocate
- Host: Amanda Conschafter, Alliance for Patient Access
12:25 p.m. Keynote Speaker
- Congresswoman Kim Schrier, MD (WA-08) Author of the VACCINES Act
- Host: Susan Hepworth, National Coalition for Infant Health
12:50 p.m. Break 1:05 p.m. COVID-19 Chaos: Isolation, Disruption, Preterm Birth Reduction?
- Rebecca L. Cypher, MSN, PNNP 2020 AWHONN President
- Christine Tester, Mental Health Peer Specialist & Family Advocate, Hand to Hold
- Mitchell Goldstein, MD National Coalition for Infant Health; Loma Linda University Children’s Hospital
- Host: Susan Hepworth, National Coalition for Infant Health
1:20 p.m. High Time: Facing Disparities in Infant Health
- Jenné Johns, MPH President, Once Upon a Preemie; Founder, Once Upon a Preemie Academy
- Michal A. Young, MD, FAAP, FABM Associate Professor, Department of Pediatrics and Child Health, Howard University College of Medicine
- Host: Susan Hepworth, National Coalition for Infant Health
1:40 p.m. Introducing: Alliance for Black NICU Families
- Ashley Randolph-Cooley, Patient Advocate
- Host: Susan Hepworth, National Coalition for Infant Health
1:45 p.m. Congenital Gut Disorders: Research & Reality
- Martin L. Lee, PhD, CStat, CSci, FIBMS Vice President, Clinical Research and Development, Prolacta Bioscience®
- Heidi E. Karpen, MD Associate Professor of Pediatrics, Associate Director Neonatal-Perinatal Medicine Fellowship Training Program, Emory University/Children’s Healthcare of Atlanta
- Katie Trudo, NICU Parent
- Host: Susan Hepworth, National Coalition for Infant Health
2:05 p.m. Closing Remarks
- Susan Hepworth, Executive Director, National Coalition for Infant Health
The National Coalition welcomes those interested in our activities as well as organizations interested in protecting access for premature infants through age two to visit our website www.infanthealth.org.
Disclosures: The authors do not have any relevant disclosures.
Corresponding Author
Mitchell Goldstein, MD
Professor of Pediatrics
Loma Linda University School of Medicine
Division of Neonatology
Department of Pediatrics
mgoldstein@llu.edu
Susan Hepworth
Director
National Coalition for Infant Health 2020 K Street NW
Suite 505
Washington, DC 20006
Email: info@infanthealth.org
National Coalition for Infant Health Values (SANE)
Safety. Premature infants are born vulnerable. Products, treatments and related public policies should prioritize these fragile infants’ safety.
Access. Budget-driven health care policies should not preclude premature infants’ access to preventative or necessary therapies.
Nutrition. Proper nutrition and full access to health care keep premature infants healthy after discharge from the NICU.
Equality. Prematurity and related vulnerabilities disproportionately impact minority and economically disadvantaged families. Restrictions on care and treatment should not worsen inherent disparities.